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Sunday, April 19, 2009

Slow Progress

I'd like to say that Izzy is no longer sullen, but that is not true. Today has been about trying to get her comfortable. She was obviously in pain for quite a while. The nurse figured if we got her pain under control she might start to feed herself again. I felt our first step was getting her to open her mouth and move around a little. So both of us did our own thing. I got her interested in her pacifier again (which was always a favorite for her). First, she wouldn't take it at all, but then I got her to hold it in her hand, then she held it in her mouth for a couple of seconds. The nurse gave her tylenol with a morphine chaser and versed for dessert. She chilled out, stretched a little, then accepted the pacifier I was still trying to get her to take. She sucked the pacifier until she fell asleep. She stayed asleep for several hours. That is very good. When she woke, she was not happy without the pacifier. That is much closer to normal!

About an hour or so ago, she woke up a little and tried to move her arms. She got the arterial line out today and her left arm is extremely weak and tense from being held out straight and down all week, but I put her colorful baby doll on her chest and she reached both hands up for it. It was nice to see her moving and all the while sucking her pacifier. She had been moaning for most of her waking day, but while she played, she was much calmer. Now, she was sleeping next to me, until her newborn room mate woke her up.

Phin was able to visit Izzy today and I think it was very good for him, even though after seeing her he decided the television program she was watching was much more interesting. Izzy liked it too for a little while.

Now we are just waiting for her to start to get better. Her pain needs to be controlled. She needs to try eating again. Hopefully, her use of the pacifier will allow us to get the bottle in her mouth. Before she took the pacifier, I tried to feed her a bottle and she cried out because of it. That is weird because she is not making any noises. Up until that point, I couldn't even get her mouth open. She absolutely refused. She is doing better at opening now that she has accepted the pacifier back into her life. So, the feeding tube stays for now and tomorrow, we will try some solids to see if she will open for those. I hope she starts to improve. Her eyes are starting to get deep dark circles. She is getting that sick look and her little moans/grunts she is constantly doing is very sad.

On a clinical note, she had the art line removed and the foley cath. They discontinued much of her dirurectics and no more heart meds. So, she has in the pd drain (chest tube), the central venious line in her neck, one IV in her foot, oxygen, and the n-g tube. We need her to want to eat, to want to move, to do more than just moan/grunt. If she can start doing more than that, she can start to turn around and maybe just maybe we will see an end in sight. Right now, she is looking like the beginning of a hospital stay, not the middle.
Mel

10 Message(s)


Posted Apr 20, 2009 11:38am
Sending prayers & HEART HUGS that McKenzie will start doing what she needs to.
HANG IN THERE!
cp: josephmichaelhall

Posted Apr 20, 2009 10:13am
Prayers continue your way!
Laura and Lily
cp: lilygrace2

Posted Apr 20, 2009 7:49am
Poor thing!! It is really hard to say what is going on with her. I'm sending up many prayers that she gets well enough soon so she can get back to being a happy little girl!!
Always in our many thoughts and prayers,
Stefenie, Ryan, Wyatt and Logan Jacks
cp: Loganbear

Posted Apr 20, 2009 12:38am
Love, prayers and well wishes are being sent to all of you ongoingly! God bless precious Izzy and all of you, her precious family too!!

Posted Apr 19, 2009 9:38pm
Will was very down, at his last heart surgery, he was 14 months. He would not smile, eat, snuggle, and even when we got home, the first couple of days. Then he slowly came out of his shell and began to trust us again.
poor lil' guys....but at least they are young, and she will forget!!!

Posted Apr 19, 2009 9:34pm
Glad to hear that she's moving in the right direction and some of the "tubes" are gone. Hoping that by tomorrow she's starting to feel a little bit more like herself.

Posted Apr 19, 2009 9:33pm
Awe... We are still praying for her... I can totaly understand. She will get there though. She sees you there, right by her side cheering her on and she'll want to get better as soon as possible.
Heart Hugs
Andrea

Posted Apr 19, 2009 9:11pm
We are thinking of her and have a candle lit

Posted Apr 19, 2009 9:10pm
A small step forward with the pacifier is still a step forward. We can only imagine what is running through her little mind right now, but you know she is hurting. I'm sure she is just a bit frightened and doesn't understand all of this. But she'll come around when she's ready. Izzy's a little fighter and she won't let this get the best of her. Yes, it's hard to see her like this. Just remember that progress is still progress even if it is small or slow. Much love and many prayers for you all.
Dorie
cp: MatthewNeuhaus

Posted Apr 19, 2009 9:05pm
Aww Mel, she will continue to get better, sweetie....it's hell on a body after surgery and with all of the 'extras' that hospitals give the patient...she will begin improving very, very soon. Surgery is hell!! You're doing so good, your words are so tender and loving, McKenzie is so blessed having you and Dale as her parents. She is so loved...hang in there honey, the worst is almost over :o) and then you can go on with 'life'.
Sending lots of love and dinner on Tuesday unless we hear otherwise :o)
Aunt Char xoxoxoxo

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