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Monday, April 27, 2009

Getting there

She's still swelling up following each feeding, but has become more efficient in deflating herself. Today she started out gangbusters eating-wise, then tapered off as time progressed as she grew steadily more tired following each new interuption (she only had ~2 oz around 3pm). One of the hardest things here is to manipulate the situation to where she finally nods off then chase off anyone daring to disturb her sleep.

The IV lasix continues, the more liquid lost the better. I do not see any significant difference in her puffy face now vs. earlier, but we will see. A few full diapers might have been the difference in making her more comfortable sooner following feeds.

Oxygen feed is now decreased down to .12 L/min, an insignificant amount to most, but possibly just enough to keep Izzy's sats where they need to be. If possible, it will be further lowered/removed.
One thing we have to continue monitoring is her hemoglobin levels. There appears to be a slight downward trend.

That is all.

Dale

p.s. No. That was not all. There was a welcome level of smiling today with a couple of unexpected weak laughs.

8 Message(s)


Posted Apr 27, 2009 11:33pm
Aww...such good news...prayers continue for McKenzie's full recovery and for lots more laughter and smiles :o) It's coming!!
Love to all...Aunt Char xoxoxo

Posted Apr 27, 2009 9:25pm
Alright Izzy! Way to go little gal! Daddy loves those smiles and laughs. Dale and Mel, just remember, Lasix is good. Lasix is our friend. It's what keeps Matthew on the go - that and the Digoxin, Enalapril, Carvedilol, Aldactone, CoQ10 and 81mg aspirin. But hey, whatever works! Izzy will be up and around before too long. Then look out! She'll be making up for lost time and will really keep you hopping. Praying for all of you.
Dorie
cp: MatthewNeuhaus

Set1_rose
Posted Apr 27, 2009 9:10pm
step by step keep going Izzy!
Love, June,David and Kristen
Posted Apr 27, 2009 8:31pm
Yeah!!!! I begged her for smiles. I never expected a laugh so soon. Tell my baby I love her and give her kisses from me. And Phinney picked out a new toy for her and played with it for quite a long time to make sure it works. We think she'll love it.
Love,
Me

Posted Apr 27, 2009 7:47pm
Hang in there Izzy! You will be back to normal in no time!!
Hugs and kisses from Virginia Beach!!
XOXO

Posted Apr 27, 2009 7:08pm
yeah izzy i love you baby girl keep holding strong for uncle bob love you allways and for ever

Posted Apr 27, 2009 6:56pm
Good to hear some laughter is coming through. Hope she keeps improving.

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