Today was the top of the roller coaster, hands in the air! After
yesterday, Dale and I arrived expecting the absolute worst, but
were amazingly surprised to find McKenzie's ventilater had been
removed! Last night was rough for her and she pulled out her IV
twice, so after replacing it, they took a blood gas and found her
oxygen levels too high. To get her back where they wanted her, the
nurse took her off of the ventilater and she did great!
We were able to hold her for much of the day and we were able to hear her scream. It was the most beautiful sound. She was also able to enjoy a pacifier and can now pull it in and out of her mouth when she has control over her hands. It was an amazing day.
Our hope is that she remains this stable until Monday's surgery. Until then, we continue to ride the roller coaster and hope the lowest and slowest points have already been hit, but know there are probably many more to come (along with a lot more hills).
Mel
We were able to hold her for much of the day and we were able to hear her scream. It was the most beautiful sound. She was also able to enjoy a pacifier and can now pull it in and out of her mouth when she has control over her hands. It was an amazing day.
Our hope is that she remains this stable until Monday's surgery. Until then, we continue to ride the roller coaster and hope the lowest and slowest points have already been hit, but know there are probably many more to come (along with a lot more hills).
Mel
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