And, she eats!
My Aunt Liz and Uncle Ken saved us yesterday by getting the formula before our shipment will arrive. It was finally mailed late Monday night. McKenzie actually eats the formula. With everything else, she mouths the bottle and doesn't really suck. And fights against taking the formula down. She is so smart. She knows what makes her sick. But with this new amnio acid formula, she actually eats it. It makes me so happy! I don't even care that it costs over $40 for a 14 ounce can. (It also helps that I found out yesterday that insurance will cover it.)
So, McKenzie is now averaging between 11 and 14 ounces per day of 27 calorie formula, which is the equivalent of 15 to 19 ounces per day for a regular baby. It is not the 21 ounces per day she was getting on the feeding tube, but she is very happy and still chunky, so she must not be losing weight (I hope). We will find out tomorrow at her cardiologist appointment and then her regular checkup.
On another note, both Dale and I donated blood yesterday. As I've mentioned in a previous post, blood donors are extremely important. I can't even tell you how many blood transfusions McKenzie had while in the hospital. It all depended upon the kindness of strangers. In the summer, blood supplies get low because the normal blood drives are not held due to vacations. If you can donate, please try. You can go to the American Red Cross's website to find a blood drive near you at a time that is convenient. Plan on being there around 1.5 hours. The time is well worth it. I know many were interested in donating blood just for McKenzie. I don't know the specifics of doing so, but on the Red Cross site they say you just need to call them with the name of the patient and the hospital. We haven't tried it, so we can't be sure that is the "true" procedure. Even if you donate for the general population, it helps McKenzie. If the blood supply is high enough to save everyone, McKenzie will get the blood if she needs it. Let's hope she won't need it anymore!
Mel
PS
If your health dictates that you shouldn't donate blood, just pass this message on to those who can! Even if you can donate, please pass this message on. I think donating blood just slips people's minds. Thanks!
My Aunt Liz and Uncle Ken saved us yesterday by getting the formula before our shipment will arrive. It was finally mailed late Monday night. McKenzie actually eats the formula. With everything else, she mouths the bottle and doesn't really suck. And fights against taking the formula down. She is so smart. She knows what makes her sick. But with this new amnio acid formula, she actually eats it. It makes me so happy! I don't even care that it costs over $40 for a 14 ounce can. (It also helps that I found out yesterday that insurance will cover it.)
So, McKenzie is now averaging between 11 and 14 ounces per day of 27 calorie formula, which is the equivalent of 15 to 19 ounces per day for a regular baby. It is not the 21 ounces per day she was getting on the feeding tube, but she is very happy and still chunky, so she must not be losing weight (I hope). We will find out tomorrow at her cardiologist appointment and then her regular checkup.
On another note, both Dale and I donated blood yesterday. As I've mentioned in a previous post, blood donors are extremely important. I can't even tell you how many blood transfusions McKenzie had while in the hospital. It all depended upon the kindness of strangers. In the summer, blood supplies get low because the normal blood drives are not held due to vacations. If you can donate, please try. You can go to the American Red Cross's website to find a blood drive near you at a time that is convenient. Plan on being there around 1.5 hours. The time is well worth it. I know many were interested in donating blood just for McKenzie. I don't know the specifics of doing so, but on the Red Cross site they say you just need to call them with the name of the patient and the hospital. We haven't tried it, so we can't be sure that is the "true" procedure. Even if you donate for the general population, it helps McKenzie. If the blood supply is high enough to save everyone, McKenzie will get the blood if she needs it. Let's hope she won't need it anymore!
Mel
PS
If your health dictates that you shouldn't donate blood, just pass this message on to those who can! Even if you can donate, please pass this message on. I think donating blood just slips people's minds. Thanks!
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