Great Cardiologist Appointment

Waiting for her next move---to the kitchen to get the letters off the fridge or shut the front door. May 20, 2009.

Izzy and I just got back from her cardiologist's office. Her sats were in the upper 90s!!!!!! She hasn't seen numbers that high since she was taken off the oxygen. Her lungs sounded clear and she was rambunctious as ever. Dr. Cutler was very pleased with her. Since we had our little ER escapade last week, Dr. Cutler is keeping Izzy on the extra diruectics until Monday. On Monday, we d/c the third dose of lasix (she'll still be on lasix twice a day and the aldactone, but we've been giving her lasix since she was 1 week old, so that is no biggie). Tuesday we see the immunologist/pulmonologist and he can listen to her without the extra lasix and Dr. Cutler will stop by to get a quick look and listen. If all goes well, we should be off the third dose of lasix for good at that point. If not, we have one week before I go back to work to get her heart and lungs straightened out. It sure would be nice to cut down on the amounts of time we have to give Izzy meds. Right now, she is on 9 meds at 5 different times a day.

After my shock regarding the right pulmonary artery news at the last appointment, I came prepared with many questions. Dr. Cutler explained that the likely cause of the kinking of the PA (pinching) was that something happened to the patch they used for the VSD, such as shrinking after it was placed. She said many things can happen to the patch after placement and any of those things could cause the kinking in the PA. Since it was a kink and not a shrinking of the entire PA, in the cath lab they could balloon the kink and place a stent to keep it open if necessary (like they do for adults with blockage). The plan now is to get Izzy healthy and healed and wait since the kink is not causing any noticeable problems at this point in time. In several months, they will probably do another perfusion study and go from there. It is likely that McKenzie will need the cath procedure.

Izzy sounds like she is waking from her morning snooze, so I will leave you with that. I hope everyone has a wonderful holiday weekend. We are hoping to have fun and hoping my sister and her family make the trek from Rochester!

Mel

PS
Izzy is nicely gaining weight too! She now weighs 17 pounds 11.8 ounces.

13 Message(s)

  

Posted May 22, 2009 8:45pm

by Robin Scott

Way to go, Izzy!!! Keep up the great efforts!!!
Sending love and prayers,
Robin Scott

  

Posted May 21, 2009 10:00am

by Laura Davenport

Fantastic news! She is so cute!

Laura and Lily
cp: lilygrace2

  

Posted May 21, 2009 6:27am

by Trisha King

Great news Izzy! Keep it up!

Prayers Always,

Trisha
cp: JohnnysWay

  

Posted May 21, 2009 12:09am

by Alicia Hall

YEAH IZZY!

HAVE A WONDERFUL WEEKEND!

HEART HUGS ~

cp: josephmichaelhall

  

Posted May 20, 2009 10:24pm

by Janeen Greathouse

glad to hear all the good news. hope everything keeps going well, glad she's doing so well. hopefully, you'll be at Fireside next year with a very healthy, feisty little girl and boy!!!

  

Posted May 20, 2009 6:52pm

by Stefenie Jacks

Glad that Izzy is still doing well. Praying that you can kick the third dose of Lasix and get her other issues worked out before you return to work!

Always in our many thoughts and prayers,
Stefenie, Ryan, Wyatt and Logan Jacks
cp: Loganbear

  

Posted May 20, 2009 5:22pm

by Courtney McKenzie-Moore

I'm glad to hear some good news about Izzy. I LOVE the new pic you posted.

  

Posted May 20, 2009 2:52pm

by susan wit

that is wonderful news! cant wait to see her.
susan wit

  

Posted May 20, 2009 2:51pm

by Angela Holtz

Sweet - such good news.

  

Posted May 20, 2009 12:08pm

by Renee McConahy

Mel,
Sounds like things are looking up! Hopefully, Hazel and I will be able to pick a time to look in on Izzy in the next week or so.
Renee

  

Posted May 20, 2009 11:24am

by Tamara Recker

Thats wonderful. Have a great week/end. Hope the kiddo's dont wear your out! :)

  

Posted May 20, 2009 11:10am

by Taffy Graessle

Yahoo!! Hope you all have a great week end! Lot's of prayers have been answered, now enjoy their benefits. Great news!!

  

Posted May 20, 2009 11:09am

by Kerri Testement

Great report! Any reduction in meds — while still things the same, health wise — is a good thing. Hope that extra fluid stays away for good!

kerri testement
cp: katietestement

Posted May 26, 2009 8:37pm

by Hazel McNulty

McKenzie,
What a beautiful picture. Your hair is getting so long. We miss you at school and hope for your continued health improvements.
Hugs and Kisses
Ms. Hazel
P.S.
Mom and Dad we will talk about school when the time seems appropriate. You continue to be in my thoughts each day.