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Wednesday, September 18, 2013

Transition

I have had so many people ask how kindergarten is going that I thought I had better update. The answer is not easy to give. Frankly, the last couple of weeks have been extraordinarily draining for our family.

Obviously, Izzy had a lot of high expectations for kindergarten. She had been dreaming about it for years. And as strong-willed as Izzy tends to be, she knew or at least thought she knew what she was supposed to be able to do and be in kindergarten and she tried to make herself be that person.

Unfortunately, Izzy's reality came nowhere close to Izzy's expectations of herself, of kindergarten, of everything. Couple that with the sudden removal of naps from her day and the first two weeks of school were explosive. Izzy was constantly flipping between being angry, exhausted, jealous, scared, overwhelmed, excited, sad, confused, exhilarated, and frustrated. Sometimes, she was all at once!

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During the first two weeks, Izzy had a lot of little problems that got blown out of proportion due to her exhaustion and high expectations. I think that we have all of those worked out now (Izzy's teacher, principal, therapists, and everyone at the school are fabulous!).
And I think we may have a solution to Izzy's exhaustion as well. Dale, Izzy, myself, and anyone who would talk to me about it, all brainstormed ways to help Izzy rest. She is now taking a proper nap on the school's clinic cot and so far, she has been a completely different kid for us at home and I haven't heard the same reports from school about poor behavior.

The biggest problem, however, was Phin and Izzy in constant battle, fighting and angry with each other the first couple of weeks of school. And, to an extent, it was mere sibling rivalry. But, beneath the surface, it was so much more.

With the start of kindergarten, McKenzie broke free of her preschool cocoon and started to fly. Unfortunately, from her new perspective, she suddenly saw with perfect clarity that she was different. She was different from the other kids--smaller and could not play the same way. But what really shook her world was learning that her brother was different. He didn't act the same way around other kids that he did when it was just the two of them. (He played tag!) She was angry with Phin for being different and jealous that she couldn't be different too.

And Phin had to learn to go from being simply Phin, to being Izzy's brother again. He didn't just have a sister who was at another school. His sister was there, with him, and she was the one who gets tired really quickly and can't play tag. She is the one who throws fits at the drop of a hat. Plus, he had the added dimension of worrying about Izzy more because she was in his building at all times. And with as exhausted as Izzy was, she looked pretty bad, so Phin had the added worry that something bad was going to happen to Izzy at school. He is desperately afraid that she will die and he won't be able to say goodbye.

Thankfully, both kids work with a wonderful therapist who help them with anger, fear, frustration, and everything else and the hospice social worker works with both of them on their feelings regarding Izzy's prognosis. With their help, we're addressing the kids' fears and anger. And the kids have started to be nice to each other again. It is a work in progress, but we continue to try. And they have started to play together again.

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Izzy's exhaustion and close proximity to germ factories (i.e., other kindergartners) did lead to a sinus infection at the end of last week, but in true Izzy fashion, she didn't let it get her down.

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The doctor's visit wasn't uneventful though. Having to go to the ER in August left a big scar. Izzy was petrified that she would have to go back to the hospital for her infection. That short hospital visit scared her pretty bad (even though she took it all in such stride). Thankfully, with this infection, she didn't need any shots and the antibiotic is yummy. Perhaps the next visit won't be as bad.

Kindergarten school photo. September 2013
A week from Friday is Izzy's appointment with the cardiologist and the Sunday after that, the 3rd Annual Southeast Michigan Congenital Heart Walk. We are still looking for people to join Team Izzy and help us raise money for research that will save people born with broken hearts. Will you help? Here is the link to join or donate to Team Izzy!

Thank you for checking in on our girl!



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10 Message(s) from Carepages


Set1_rosePosted Oct 17, 2013 1:34am
I can't believe we missed this post until now!! Working through a new reality will be a work in progress for your whole family but it sounds like you are addressing each thing as it comes up as best you can. We send much love!! June & David

Posted Oct 1, 2013 10:45pm
Wishing you better days ahead! You are an amazing family!

Posted Sep 22, 2013 12:27am
I can almost feel Izzy's many emotions she's processing with her clash of expectations, imagination, and reality of Kindergarten. New prayers for peace and acceptance for The Little Dancer -- that's how my 7 yo grandson refers to her. I let him know a little about her after he saw my screen saver of Izzy in her pink dress, with her star wand. He knows he's Phin's age so he tries to think of what it would be like to have a little sister who is chronically ill -- we say special prayers for Izzy and Phin. I love her and admire you guys as her parents.

Posted Sep 20, 2013 11:27am
You guys are doing such an amazing job. It's great that you have wonderful teachers and therapists to work with. Many hugs and prayers from us. Lily and Johnny say HI!

Posted Sep 19, 2013 7:22pm
Oh Mel, so much to deal with. You and Dale always amaze me with your insights and awesome parenting. I wish so much your family would only know happiness and not heartache. I am glad you have great support. Please know although we are not physically near you, we think of you often and pray for your family.
Hugs,
Amy St.Clair and family

Posted Sep 19, 2013 11:11am
I just love your family! Hugs to each of you!

Posted Sep 19, 2013 10:18am
May God continue to give you the strength you need for Izzy and Phin. You are amazing as always in how you help both of them through these trials. So happy to hear that things are improving. You are always in my thoughts and prayers.
Terri

Heart8Posted Sep 19, 2013 4:52am
I was wondering if the naps were still working. I am sooooo glad to hear that they are. I love you and have you always in my prayers. Love, Ma

Posted Sep 19, 2013 1:42am
Love all the pics. You both have a lot on your plate. Thank God you both have the strength to get thru the major crisis. Thanks again for sharing the trials and tribulations.. Love to all of you.

Posted Sep 18, 2013 9:50pm
Big hugs thank you for sharing :)

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