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Tuesday, January 15, 2013

"Cautious"

I knew I shouldn't have held onto the word "optimistic" when the cardiologist told us last week that she was "cautiously optimistic" about the new plan to coil off collaterals. I was right to only be cautious. After talking with the interventional cardiologist and going back to the cardiologist who conducted the MRI, it was determined that none of Izzy's collaterals are big enough to coil. They are all way too small for the coil (spring) to be inserted. That means, we must allow 1/3 of Izzy's blood to flow from her aorta to her lungs and nothing can be done about it in the cath lab.

The cardilogists, however, still want to move forward with the cath. First, Izzy has to have a CT to get a better image of the blood flow to the lungs through the pulmonary arteries. I was expecting this. At least a week later, they will do the cath. (They need the CT to help plan the cath, including whether they have to insert the catheter through Izzy's liver.) At a minimum, they will take pressure measurements during the cath. To date, science has not come far enough to ascertain the actual pressure levels inside the heart and inside the pulmonary arteries without inserting a catheter. It is very important to determine whether the pressure in Izzy's right ventricle has increased and to know whether the pressure in her pulmonary arteries has increased. Treatments or procedures may be added if either has occurred. Currently, Izzy is not being treated with pulmonary hypertension medications because the pressure was only significantly high in places. If there are high pressures everywhere, there are definitely medicines that may help. So, we are going forward.

There is new technology as well that will allow the doctors to place the cath images on top of the CT images, making a 3D type picture of Izzy's circulatory system. That could give the doctors a lot more information as well. We don't have dates yet for the CT or the cath. We should know by the end of the week. Izzy's primary cardiologist wants it all done in the next couple of months though.

On another note, Izzy got new shoes with new orthodic braces for her ankles this past weekend and new glasses (to be coming soon).

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And can you believe it was 60 degrees in Michigan last weekend? It was! So, we got to work our lungs by blowing bubbles!

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Unfortunately, following the bubble blowing, Izzy's heart was going quite a fast pace at 150 beats per minute (even after resting). And she has been dropping her oxygen sats below 90 when sleeping. Either she is coming down with a bug (which her primary care doc did not see yesterday) or she really needs the cardiologists to find something. I hate to hope this, but let's hope it is a bug (not a nasty one like the flu though, something easy).

Mel

12 Message(s) from Carepages

Posted Jan 17, 2013 11:28pm
She is getting so big!! and she looks so happy!

Posted Jan 17, 2013 2:28pm
Always praying for Izzy.
Amy St.Clair

Encourage_hug
Posted Jan 17, 2013 1:26pm
God Love Izzy this little girl continues to amaze us all. Don't want Izzy to be sick but also hope it is something simple. Love the new shoes. This little one always has a smile on her face and what a beautiful face it is.
Diana Bryant

Heart8
Posted Jan 17, 2013 8:41am
Thinking of you all and keeping you close in our prayers. Izzy I love your new shoes!:) And blowing bubbles in January in michigan, who would've thought that?! :)
cp: AubreeAnne

Posted Jan 16, 2013 11:27am
Bless her heart - she is such a little doll.

Posted Jan 16, 2013 8:39am
Thinking of you...Praying for you and Izzy as well. Merry

Posted Jan 16, 2013 12:50am
Prayers are with you. I am sure that Grandpa will send prayers down from heaven ..
Love Elaine

Posted Jan 15, 2013 8:20pm
Can I just say, she sounds like such a beautiful gift from God. You are such a good and caring mom!

Posted Jan 15, 2013 8:05pm
I like the sound of "new technology"! As always, keeping Izzy and you all in my thoughts and prayers!

Posted Jan 15, 2013 7:20pm
The new shoes are awesome!!! The other news..I hope the CT presents some options.

Posted Jan 15, 2013 7:06pm
I truly hope that between the CT scan and the cath that they find a way to help Izzy. We think of her often and hope that answers come your way.
Love the pictures!
Kelly
cp: JacksHeartUpdate

Posted Jan 15, 2013 6:27pm
Thinking about you all and sending good positive thoughts. Love the shoes Izzy! XOXO

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